If you saw someone having a seizure, wouldn’t it be great if you could do something to stop it? That person could then continue on with their day, rather than suffer and potentially end up in hospital? The Exchange Breathing Method (EBM) is helping many people across the world to achieve this; and, with your help by taking part in some important research into this seizure first aid method, potentially many more people can now be helped too.
Seizures have such a profound impact on quality of life, for both the individual who has them and for those who care for them. They can cause injuries, mild to severe memory loss, hours of recovery, and sadly even more dire consequences such as the risk of SUDEP (sudden death from epilepsy).
How it all started….
Just over a decade ago, my son was having over 500 seizures a week. They were relentless, day and night. Life was barely tolerable for our whole family. After four-incredibly sleep deprived years spent caring for my very ill son and researching anything which could be a solution, in 2012, the Exchange Breathing Method (EBM) was invented as a first aid method for halting a seizure in progress. In brief, it requires the first aider to supply a puff of their exhaled air into the nose of the person having a seizure (full instructions are given here). I used it successfully hundreds of times with my son (who is now seizure-free, most likely as a result of a combination of therapies, including the Exchange Breathing Method).
Now there are thousands of people across the world using the EBM, and I frequently see it mentioned on Seizure and Epilepsy support groups (thank you so much to all of you special individuals who take the time to help others by spreading the word on EBM: I always feel so indebted and thankful when I see these posts).
Take part in valuable research!
If you would like to help us with a very important step with EBM becoming a mainstream method for stopping a seizure, then if you or someone you know has seizures, please consider taking part in the Exchange Breathing Method research (part-funded by the Answers & Hope Charity), which is being undertaken by researchers from three institutions, including Harvard Medical School.
Sign up here: https://tinyurl.com/ExchangeBreathing
Anyone who has seizures or cares for someone with seizures can take part in the research. You can be of any age, from any country, have any seizure type, and do not need to be verbal or able to follow instructions (the first aider just needs to be able to do this). You only need to be willing to use EBM (even if you have not used it yet), and you can also remain on any current medical diet or medications.
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